Thankfully, this past week has been pretty uneventful. He couldn’t keep pace with the feeding plan the doctors put in place. As a result, a Nasogastric feeding tube (NG Tube) was inserted so that he could get the nutrition to gain weight, and the volume of fluid necessary to maintain hydration and kidney function. William’s labs have indicated that his electrolytes have been stable throughout the week. This is a big milestone he had to meet in order to get out of the NICU.
Now, with his kidney function known, he needs to begin to take all of his prescribed feeds by mouth in order to go home. Last week, we asked you to pray that William would take 60-70 mL by mouth in order to go home. He didn’t make a lot of progress, so the doctors want us to continue to push William this week to see if he makes progress by Thursday or Friday. If he doesn’t we will have several decisions to make this week regarding William’s discharge. The most critical is how we will give William supplemental feeds.
If William doesn’t eat enough, we will have two choices. The first choice is a short term option, take William home with with his current NG tube in place. This option is very short term (less than a month). We would continue to feed whatever he hasn’t eaten, during his current feeding, through his NG in order to meet his daily volume goals. The second option is longer term, we would transfer William to Children’s Hospital to have a Gastrostomy tube (G Tube) put in. A G tube is a feeding tube that is inserted surgically through the abdomen directly into the stomach. This will allow us to provide him with the volume of food that he needs, and administer any medication or nutritional supplements that he may need in the future.
Prayer Requests:
- That we and the doctors would make wise decisions this week.
- William’s kidneys would continue to regulate his electrolytes and urine output.
- William would begin to take at least 60 mL by mouth this week.
- Kaylee and I would work together as I go back to work this week.
We would like to thank all of you for your prayers, and your generosity during these past few weeks. We feel truly blessed to have so many people supporting us.
Will be praying for y’all this week! Love y’all!
Praying as you have requested and for God to continue to be glorified. I loved seeing you two love on William together! I loved getting to hold him…he is precious.
Praying for healing & wisdom ❤️🙏🏻,
Praying for William.
I will continue to pray for lil man (William).. I will also pray that the lord will give you both direction on your decisions, knowing they will be the right ones for him.
love Marsha
Praying for you all to have wisdom. Prayers for sweet william to thrive
I am praying for God to bring a miracle knowing He can. That He keeps your whole family in his arms.
He is a beautiful baby & looks healthy. I’ll be praying!
Praying for you guys!!
We are friends of William’s grandparents, Bill and Beth and have been praying for you. My granddaughter had to have a G-tube put in last summer at Children’s. If you’d like to talk to someone who’s been through that and is doing well, please feel free to contact me.
I wouldn’t begin to make this decision but being home could be a really great boost for him. Babies can sense well being…if medically possible that would be my choice. I am continuing my optimism for your sweet baby boy.
Ya’ll are always in my prayers. Thank you for the updates. Love you!
Dear Lord thank you for all the prayers that have gone out for sweet William – he has entered this world showered with many prayers from the saints . Lord Jesus,please reveal your promises and truth to all those involved with Williams life- help us all to pray with genuine mountain moving faith ! And Lord help us to wait patiently as we know you have a perfect plan for Williams life ! Thank you Lord for all the blessings so far in his life ! Thank you for the miracle of his life ! Thank you for the ways you have already revealed your power and goodness ! We pray for quick healing for William and ask your mercy on him and those involved ! And in the midst of this Lord give them all mighty faith ! Hebrews 12:1-2
Many prayers for William and you both!! I pray for clarity in making the right decision this week!!! Also pray for his feedings to go better and he gets home soon!!!! I am friends with Matchett’s mom and dad. I am available to help Kaylee when you go back to work. I would LOVE to help in any way I can. God bless you 3!!!
Ron and I continue to pray for all of you and doctors. Thank you for specific requests and we will pray for those things. God is your strength and thank God He tells us we can do all things through Him…
Our family will continue to pray. Thanks for the updates.
Praying for your family and precious William .
Thanks for update. Praying for your boy.