5/18/16 Update

This is the first in depth update we have made in a couple of months, most of the latest updates regarding William we have posted directly to Facebook. He was doing fairly well until the end of April when he substantially decreased eating and became dehydrated. We...

2/14/16 Update

Thankfully, this past week has been pretty uneventful. He couldn’t keep pace with the feeding plan the doctors put in place. As a result, a Nasogastric feeding tube (NG Tube) was inserted so that he could get the nutrition to gain weight, and the volume of fluid...

2/8/16 Update

This morning, when we got to the hospital, William had gained a pound from the day before due to water retention, and his IV had failed. Not wanting to start a new IV, the doctor wants him to begin to take in all fluids and nutrition by mouth. He has been eating well...